Support Group
Join Us Monthly
We are pleased to announce a new meeting space! Starting in May 2024, we will have our monthly support group meetings at the Global Down Syndrome Foundation Education Center. The address is 3239 E 2nd Ave, Denver, CO 80206. Parking is free in the visitor garage on the west side of the building. Click here for parking instructions. We meet on the second Saturday of the month from 1-3pm.
Our support group welcomes all MGAC, non-members, and their loved ones. Become a member.
Why do I need a support group?
Information sharing
Education decimination
Social interaction with people who get it
Occasional guest speakers and doctor presentations
Membership meeting
Global has a parking garage under the building, which is accessed from the west side of the building via the alley.
• When driving on E. 2nd Avenue, turn north into the alley and then turn right into the parking garage (it slopes downward).
• Press the top call button to connect with the receptionist. The receptionist will open the garage door.
• Please park anywhere on P1 or P2 that isn’t reserved.
• There is a set of 2 elevators that will take you to the lobby (L). Please inform the receptionist of who you are meeting with and someone will come down to greet you.
• When exiting the garage, the door will detect your vehicle and open automatically.
Membership meeting
Please join us for our October in-person meeting. To park in the building:
Global has a parking garage under the building, which is accessed from the west side of the building via the alley.
• When driving on E. 2nd Avenue, turn north into the alley and then turn right into the parking garage (it slopes downward).
• Press the top call button to connect with the receptionist. The receptionist will open the garage door.
• Please park anywhere on P1 or P2 that isn’t reserved.
• There is a set of 2 elevators that will take you to the lobby (L). Please inform the receptionist of who you are meeting with and someone will come down to greet you.
• When exiting the garage, the door will detect your vehicle and open automatically.
Membership meeting
Please join us for our November in-person meeting. We will have a special presentation from Kristin Neusel from UCB. Her topic will be “The Bittersweet Truth on Sugar” .
To park in the building:
Global has a parking garage under the building, which is accessed from the west side of the building via the alley.
• When driving on E. 2nd Avenue, turn north into the alley and then turn right into the parking garage (it slopes downward).
• Press the top call button to connect with the receptionist. The receptionist will open the garage door.
• Please park anywhere on P1 or P2 that isn’t reserved.
• There is a set of 2 elevators that will take you to the lobby (L). Please inform the receptionist of who you are meeting with and someone will come down to greet you.
• When exiting the garage, the door will detect your vehicle and open automatically.
Alexion - ULTOMIRIS Presentation
Join us to learn about ULTOMIRIS, a treatment for anti-acetylcholine receptor antibody-positive generalized myasthenia gravis (gMG), at a free in-person event. Those impacted by gMG know how important connecting to others can be. That's why Alexion's programs are here to help you get back to what matters. Please visit Ultomiris.com/gmg/join-our-events. You can also call 844-378-2123 to register. Please register to RSVP to the event.
April support group meeting
Please join us for our April monthly support group meeting.
March meeting
Please Join Kristin Neusel, Patient Advocacy Liaison from UCB Pharmaceuticals, as she presents a fun and interactive presentation on health & wellness for the MG community! Kristin is a Registered Dietitian, Certified Diabetes Care & Education Specialist, and Certified Personal Trainer who has worked in rare disease for over a decade. Join in on the fun to learn more about:
Nutrition basics for gMG
Label reading 101
Enjoying Celebrations (without too many restrictions!)
Smart Choices & Helpful Tools/Apps
Recipe Alterations
Feel free to bring a food label and a favorite recipe if you wish! She also will be doing a food demonstration!
February meeting
Please join us for a presentation from UCB given by Alexandria Harrold, PhD. The presentation will include information about zilucoplan, an FDA-approved treatment for adults with generalized myasthenia gravis who are anti-AChR antibody positive, including how it works and what patients and caregivers can expect with this treatment.
January support group meeting
Please join us for our January meeting at the Global Down Syndrome Foundation in Cherry Creek. The address is 3239 E. 2nd Ave, Denver, CO 80206.
Holiday Get-together
Please join us for a casual holiday get-together. Please bring a small dish to share, either sweet or savory.
University of Colorado Neuromuscular Symposium
I am excited to announce an event coming to Colorado in November. The University of Colorado Neuromuscular Symposium will be held on Saturday, November 9th at the Anschutz Health Sciences Building ,1890 North Revere Court Aurora, CO 80045. This a free event but you must register to attend. We will not have an in-person meeting in November. To register for this event, go to https://www.eventbrite.com/e/university-of-colorado-neuromuscular-symposium-tickets-991045171787.
Support Group Meeting
We have a new meeting space! Join us at the Global Down Syndrome Foundation Education Center. The address is 3239 E 2nd, Denver, 80206. Free parking is available in the underground garage on the west side of the building. Click here for parking instructions.
Support Group Meeting
We have a new meeting space! Join us at the Global Down Syndrome Foundation Education Center. The address is 3239 E 2nd, Denver, 80206. Free parking is available in the underground garage on the west side of the building. Click here for parking instructions.
Ice Cream Social
Please join us in celebrating Myasthenia Gravis Awareness month! We are hosting an Ice Cream Social at Denver’s Cook Park. There is a parking area on the southeast side of the park and street parking available on Mexico Ave (south side of the park) and Yale Ave (north side). We will start with a 1K walk at noon. Check back for details on signing up.
Support Group Meeting (Copy)
We have a new meeting space! Join us at the Global Down Syndrome Foundation Education Center. The address is 3239 E 2nd, Denver, 80206. Free parking is available in the underground garage on the west side of the building.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting (Copy)
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
SPECIAL EVENT - Support Group Meeting
SPECIAL EVENT! Join others living with generalized myasthenia gravis (gMG) and their caregivers. Ask questions, gather information, and learn more about the condition at a free in-person event. Lunch is included. The event is free for one person and their guest, but registration is required. Click here to register or go to https://alexiongmgevents.com/.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. We will have a special guest speaker, neurologist Dr. Jinny Tavee, Chief of the Division of Neurology & Behavioral Health at National Jewish Health
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the hospital cafeteria of Presbyterian St. Luke's Medical Center. Food is available for purchase until 2:00 PM.
Support Group Meeting
Join us in the Mead Community Room at Virgina Village Library. The room is to the left of the first entrance to the library.