Please join us for our April meeting!

Please join us for our November in-person meeting. We will have a special presentation from Kristin Neusel from UCB. Her topic will be “The Bittersweet Truth on Sugar” .

To park in the building:

Global has a parking garage under the building, which is accessed from the west side of the building via the alley.

• When driving on E. 2nd Avenue, turn north into the alley and then turn right into the parking garage (it slopes downward).

• Press the top call button to connect with the receptionist. The receptionist will open the garage door.

• Please park anywhere on P1 or P2 that isn’t reserved.

• There is a set of 2 elevators that will take you to the lobby (L). Please inform the receptionist of who you are meeting with and someone will come down to greet you.

• When exiting the garage, the door will detect your vehicle and open automatically.

Please join us for our October in-person meeting. To park in the building:

Global has a parking garage under the building, which is accessed from the west side of the building via the alley.

• When driving on E. 2nd Avenue, turn north into the alley and then turn right into the parking garage (it slopes downward).

• Press the top call button to connect with the receptionist. The receptionist will open the garage door.

• Please park anywhere on P1 or P2 that isn’t reserved.

• There is a set of 2 elevators that will take you to the lobby (L). Please inform the receptionist of who you are meeting with and someone will come down to greet you.

• When exiting the garage, the door will detect your vehicle and open automatically.

Join us to learn about ULTOMIRIS, a treatment for anti-acetylcholine receptor antibody-positive generalized myasthenia gravis (gMG), at a free in-person event. Those impacted by gMG know how important connecting to others can be. That's why Alexion's programs are here to help you get back to what matters. Please visit Ultomiris.com/gmg/join-our-events. You can also call 844-378-2123 to register. Please register to RSVP to the event.

Please join us for our monthly support group meeting.

Please Join Kristin Neusel, Patient Advocacy Liaison from UCB Pharmaceuticals, as she presents a fun and interactive presentation on health & wellness for the MG community! Kristin is a Registered Dietitian, Certified Diabetes Care & Education Specialist, and Certified Personal Trainer who has worked in rare disease for over a decade. Join in on the fun to learn more about:

1. Nutrition basics for gMG

2. Label reading 101

3. Enjoying Celebrations (without too many restrictions!)

4. Smart Choices & Helpful Tools/Apps

5. Recipe Alterations

Feel free to bring a food label and a favorite recipe if you wish! She also will be doing a food demonstration!

Please join us for a presentation from UCB given by Alexandria Harrold, PhD. The presentation will include information about zilucoplan, an FDA-approved treatment for adults with generalized myasthenia gravis who are anti-AChR antibody positive, including how it works and what patients and caregivers can expect with this treatment. 

Please join us for our January meeting at the Global Down Syndrome Foundation in Cherry Creek. The address is 3239 E. 2nd Ave, Denver, CO 80206.

Please join us for a casual holiday get-together. Please bring a small dish to share, either sweet or savory.

I am excited to announce an event coming to Colorado in November. The University of Colorado Neuromuscular Symposium will be held on Saturday, November 9th at the Anschutz Health Sciences Building ,1890 North Revere Court Aurora, CO 80045. This a free event but you must register to attend. We will not have an in-person meeting in November. To register for this event, go to https://www.eventbrite.com/e/university-of-colorado-neuromuscular-symposium-tickets-991045171787.