I Have MG—And A Life!
Ann Wright

This is a short story about my 15 years of life with Myasthenia Gravis. I was diagnosed in my late 30's. When I was diagnosed, my three daughters were teenagers, and I worked full-time in the dental field.

With my first symptom (double or blurred vision), I saw my ophthalmologist, who could not find any unusual changes in my vision. Over the next two months, other symptoms manifested themselves. My tongue felt heavy, and my internist said "you’re just stressed." She suggested the cause could be three teenagers, a job, a house and life.

But other classic symptoms of MG developed: droopy eyelids, difficulty chewing and swallowing (which involved fluids coming out through my nose). I also had fatigue and difficulty with breathing and speaking.

By this time I was panicked, and my internist referred me to a neurologist who I know saved my life. After a chest x-ray and some blood tests, he quickly diagnosed me with MG. This diagnosis terrified me, however Mestinon and Prednisone cleared all my symptoms. Four months later I had a Thymectomy. Recovery went well, and I returned to work three weeks after surgery.

Although I have never been in remission, the medications have allowed me to live a normal life. Occasionally I have bad days, but I have learned to live with MG. You learn your limitations and adjust your life style.

My family is very supportive, and they are always there to help me when needed. I also believe the support group we have in our area is very helpful.

I’m not sure where this illness will take me the rest of my life, but I do know that with determination and a positive attitude I will be able to handle what’s in the future.